We went from being devastated by the in utero Dandy-Walker diagnosis to being filled with hope and optimism for our son and our future as a family. Ryan is such a blessing in so many ways. Rick, Leigh, and Grace. After finding out that our unborn child had Dandy Walker we were heartbroken! We decided that God was in control and no Doctor was going to decide the fate of our child. Two and a half years later he is happy, healthy, and thriving! Five years ago Tess was born with both Dandy-.

Witamy na stronie Fundacji chorych. Jak na początku każdego roku zwracamy się z prośbą o przekazanie. Dziękujemy wszystkim, którzy w taki sposób. Można wspierać naszą Fundaję przez portal FaniMani. Zobacz film jak to zrobić. Fundacja chorych na zespół Dandy - Walkera Podaj dalej od 2007 roku wspiera chorych. I jest uprawniona do otrzymywania.

Friday, March 23, 2012. He is now 3 years old. He is an amazing little boy that has touched so many hearts. His smile is comforting, his laugh, reassuring, and his life a picture of hope. I hope that this news will encourage you that are scared or worried and uncertain. Sunday, February 28, 2010. Our First Birthday is Approaching. Will be 1 on the 18 th. Can say a few words like mama, dada.

Monday, July 27, 2009. The link below is for parents and others looking for information on Dandy-Walker Syndrome. Our son Nicholas was diagnosed with this genetic disorder in utero. I spent many days and nights on the internet reading everything I could find on the disorder. The personal blogs I read from other mothers really helped me. I only hope we can be of help to someone else.

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